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Learning With Asperger鈥檚: A Parent鈥檚 Perspective

By Anita S. Charles 鈥 March 27, 2012 5 min read
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Imagine a world that goes something like this: To succeed according to societal norms of success, you must learn to do some things that are impossible. Yes, that鈥檚 right, I said impossible. And yet, somehow, you attempt the challenge because, after all, it鈥檚 the only way to succeed according to societal norms. And we all know how important success is.

To earn an A in English class, you must verbally deconstruct the symbolism in Robert Frost鈥檚 poem 鈥淢ending Wall鈥 while your house is on fire and collapsing around your ears. C鈥檓on, ignore the flames and the ceiling caving in and speak up! I can鈥檛 he-e-a-a-r you! Did I mention that everyone else around you is safe and sound, curled up in blankies with hot cocoa, and never a thought of a burning house? They鈥檙e doing fine, so get with the program.

To earn a B in math class, you must explain in writing precisely how you came by all of your correct answers鈥擲how your work!鈥攚hile plunging off a 100-foot cliff without a parachute. C鈥檓on, don鈥檛 let a little breeze past your ears distract you from the larger purpose here. Oh yes, and everyone else around you? They are sitting safely on porch swings, dangling their legs happily as you fall.

BRIC ARCHIVE

To earn a decent grade in science class, you must participate with others in a lab (and confront the Bunsen burner glaring at you), and must write the lab partners鈥 names in full on the report, while you鈥檙e struggling up the face of Mount Everest, breath heavy, legs burning, toes succumbing to frostbite. And all of your classmates? You guessed it鈥攖hey鈥檙e lounging in a hot tub in the Caribbean.

Are you in a wheelchair? To graduate from high school, we expect you to climb the front steps on your own two feet ... 20 times. Without falling. And don鈥檛 come whining to us about needing a ramp or a railing! If we did that for you, we鈥檇 have to do it for everyone, and you can see how unreasonable that would be. Pleeaasse. Enough of the excuses already.

Are you blind? You must take a visual arts class and be able to capture on paper perspective, color, shading, shape, and emotional depth. You will do so first in pen and ink, then in watercolor, and finally through photography and film. No, of course we won鈥檛 allow you to create three-dimensional models or find an alternative approach to the assignment!

OK, stop. Is your stomach in knots yet? Do you feel as if you鈥檝e landed in a dystopian universe where basic human needs and common-sense decency are no longer standards to live by?

What I know ... is that inside my son, there's a fire raging every time he's asked to do something on this alien planet called school."

Guess what? This scenario is precisely what we ask our students with Asperger鈥檚 syndrome (commonly referred to as a type of high-functioning autism) to do every single day of their lives in K-12 schools across the country. Hey, it鈥檚 a social world out there, and you鈥檇 better learn to play the game by the same rules as everyone else. Right?

I have watched my brilliant 16-year-old son write entire hard-rock albums to capture nuances of character and theme in a complex Shakespearean work, yet earn barely a B on an oral presentation about Edgar Allan Poe.

I have seen him get perfect answers in math, only to lose many points for not 鈥渟howing鈥 the work adequately. (In elementary school, the start of the math troubles, he was sent back from the math enrichment classroom because he kept showing up without a pencil.) I have seen him freak out over tests based exclusively on corrected homework鈥攖hat somehow didn鈥檛 manage to stay with his notebook, thereby earning him that toxic zero. Never mind the points lost for the disastrous notebook itself. (And this for a kid who was solving square roots in his head at the age of 5. Nowadays? 鈥淚 can鈥檛 do math,鈥 he tells me. What I tell him is that he鈥檚 perfectly capable of doing 鈥渕ath"鈥攈e just doesn鈥檛 鈥渄o school鈥 as well.)

I have watched my son get a D on a science lab because he couldn鈥檛 express enough details, had too many crossed-out errors in his lab report, and didn鈥檛 list the full names of his lab partners.

And on and on and on. And on. The moments make me cry. But they make my son despair, disengage, melt down, care too much, or stop caring entirely. And I think, this is what we do to children? To brilliant, kind, compassionate, gentle children? All in the name of success?

See Also

See related Commentary:
I Am a Twice-Exceptional Student

What I know鈥攂ecause parents know, trust me鈥攊s that inside my son, there鈥檚 a fire raging every time he鈥檚 asked to do something on this alien planet called school, that he鈥檚 falling off cliffs and climbing mountains every single moment of every single day of his educational programming. Not to mix too many metaphors, but sometimes all of this is happening inside him all at once. And it freaks him out. It. Freaks. Him. Out. But guess what鈥攈e鈥檚 learned to try to hide his freakouts because they just freak out everyone else. So he has learned to react as 鈥渘ormally鈥 as he can, given the circumstances.

Remarkably, and precisely how I can鈥檛 begin to know, he has learned in his 10-plus years of schooling that he is supposed to ignore the flames, simply face up to the falling, keep on climbing even with no breath or energy to do so鈥攊f he is to succeed like everyone else around him. And he鈥檚 smart enough to know that no one else seems to have these fires raging and free-falls happening, and he can鈥檛 explain what this feels like. He can only take yet another low mark for 鈥済roup participation,鈥 鈥渆ye contact,鈥 鈥減resentation,鈥 鈥渘eatness,鈥 鈥渙rganization,鈥 and try not to fall apart at the seams. (And space is too limited to begin to address the traumas of lunchroom, recess, pep rallies, substitute teachers, bells, fire drills, field trips, and bus rides.)

We have asked our 鈥淎spies鈥 to try to 鈥渇igure out鈥 the way school functions for too long. What would it take for the rest of us to try to 鈥渇igure out鈥 the way kids with Asperger鈥檚 function? What would it take to put a few ramps and railings in place, to find alternative assessments, to speak gently to these gentle souls and ask them what the world feels like to them? It鈥檚 not that difficult, honestly. And the gifts we uncover might astound us.

Author鈥檚 note: The scenarios described in this Commentary are representative of real experiences, but are not intended to portray specific teachers or classrooms. And, the good news is that many teachers can and do work hard to make school a safer place. These teachers often uncover gifts in themselves as well, and for that I am grateful.
A version of this article appeared in the March 28, 2012 edition of Education Week as Reciting Frost With the House on Fire

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